Disclaimer and privacy policy
The site e-imd.org is the property of the E-IMD. The current online version of these terms of use is the sole opposable throughout the duration of use of the site and until a new version replaces it.
1. Legal information
Site: e-imd.org
Publisher: E-IMD
Address: E-IMD - CHRU Lille - Délégation du Système d’Information - Secrétariat marchés 1 Rue Philippe Marache 59037 LILLE cedex
Director of Publication: D. Dobbelaere as Delegate of E-IMD
Site designer: Société CYIM - 46D rue Louis Kerautret Botmel – 35200 Rennes - Tel: +33 (0) 2 99 22 83 40 - Mail: CYIM
RCS: 439 038 910 RCS Rennes - Siret: 43903891000022 - APE Code: 6201Z - Intra-Community VAT number: FR 11 439 038 910
Host: Company CYIM - 46D rue Louis Kerautret Botmel – 35200 Rennes - Tel: +33 (0) 2 99 22 83 40 - Mail: CYIM
2. Disclaimer
The information about urea cycle disorders and organic acidurias provided by E-IMD is intended for educational purposes only. It should never be used for diagnostic or treatment purposes. If you have questions regarding a medical condition, always seek the advice of your physician or other qualified health professional.
E-IMD is a not for profit organisation, with limited resources. Therefore, we cannot guarantee that all information provided by E-IMD will be completely current and accurate. The information provided on this website should never be used as a substitute for professional medical advice.
3. Privacy policy
At E-IMD we are committed to protecting your privacy. Confidentiality of data relating to individual patients and visitors to the E-IMD website, including their identity, is respected by this website in accordance with the provisions of the Data Protection Act 1998. The website owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in the country and state where the website and mirror sites are located.
Only data which has been voluntarily provided will be held and such data will only be used by E-IMD to administer our relationship with you in connection with our charitable activities, aims and related purposes. We will not, without your consent, supply your name and address to any third party except where (1) such transfer is a necessary part of the activities that we undertake, or (2) we are required to do so by law.
If you use our website and are asked for personal information at any point, you are only sharing that information with E-IMD alone, unless otherwise stated.
4. Intellectual property
The general structure as well as the software, texts, images animated or not, its know-how and all the other elements composing the site are the exclusive property of the E-IMD. Any total or partial representation of this site by any person whatsoever without the express permission of the E-IMD is prohibited and constitutes an infringement punishable by articles L. 335-2 and following of the Code of Intellectual Property.
The same applies to the databases, if any, on the website which are protected by the provisions of the Act of 1 July 1998 transposing in the Intellectual Property Code the Directive of 11 March 1996 on legal protection of databases, of which the E-IMD is a producer.
The brands of the E-IMD and its partners, as well as the logos appearing on the site are registered trademarks.
Any total or partial reproduction of these brands or logos made from the elements of the site without the express permission of the E-IMD is prohibited under the Code of Intellectual Property.
E-IMD can not be responsible for access by users via hypertext links set up within the framework of the website to other resources on the network.
Any dispute in connection with the use of the site "e-imd.org" is subject to French law. The user recognizes the exclusive jurisdiction of the competent courts.
5. Data collection and right of rectification
In accordance with the law n ° 78-17 of 6 January 1978 relating to computer, files and freedoms as amended and Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016 applied since 25 May 2018 , the E-IMD, as data controller, informs you that by filling in the newsletter form you agree that your data will be used and processed for the following purposes: the issuing and editing of documents E-IMD (receipt, invoice, ...), the sending of newsletters relating to the E-IMD, and the transmission of certain data (name, first name, organization and postal address) to the industrial partners of the E-IMD.
The communication of this data is mandatory to join the E-IMD. The execution of a contract or the performance of pre-contractual measures taken at your request thus constitutes the basis of the processing. In case you choose not to communicate your data, then your membership can not be taken into account.
The recipients of your data are: the E-IMD, the E-IMD service providers involved in the data processing, the industrial partners of the E-IMD.
Your data are kept for an unlimited duration but in any case, you have a right to access, rectify and delete your data, a right to limit processing, a right to the portability of your data and the right to set guidelines for the fate of your data after your death.
To exercise your rights, please send a letter to the E-IMD accompanied by a photocopy of an identity document bearing your signature, at the following postal address: E-IMD - CHRU Lille - Délégation du Système d’Information - Secrétariat marchés 1 Rue Philippe Marache 59037 LILLE cedex
You can also file a claim with a supervisory authority.