E-IMD has more than 40 partners from 18 countries. It has established links between healthcare professionals, patient's representatives, industry and government authorities within Europe, candidate countries, the US, Canada, and Australia. E-IMD will continue to expand its network by inviting new members from underrepresented countries.
From patient support and industry partners
| Country | Town | Name | Organisation | |
|---|---|---|---|---|
| France | Paris |  |
EURORDIS, Rare Disease in Europe | |
| France | Paris | Samantha Parker | |
Orphan Europe |
| Netherlands | Zwolle | Hanka Meutgeert | |
Volwassenen en Kinderen met Stoffwisselingsziekten (VKS) |
| Belgium | Melsele | Lut De Baere | |
BOKS vzw - Belgische Organisatie voor Kinderen en Volwassenen met een Stofwisselingsziekte VZW |
| United Kingdom | Crewe | Steve Hannigan | |
Climb National Information Centre for Metabolic Diseases |
| Germany | Aschaffenburg | Hubert von Voss, Raimund Schmid | |
Kindernetzwerk e.V |
| Greece | Thessaloniki | Persephone Augoustides-Savvopoulou | |
Krikos Zois, Thessaloniki, Greece |
| Germany | Friedrichsdorf | Beate Szczerbak, Markus Ott | |
Milupa Metabolics GmbH |
| Germany | Heilbronn | Patricia Stäbe, Claudia Kiener | Nutritia GmbH |
Laboratory services for diagnosing and monitoring homocystinurias and related diseases are already available in various databases: