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For patients, parents and family

You or your child have/has been diagnosed with a urea cycle disorder or an organic aciduria.

Initially any information regarding these types of condition is hard to understand, especially at a time when you are naturally very worried and suddenly provided with lots of medical information.

By describing this condition in booklet format, you will be able to read it at your leisure, then write down any important questions that you may want to ask your specialist doctor, nurse or dietitian.

E-IMD - www.e-imd.net