Disclaimer and privacy policy


The information about urea cycle disorders and organic acidurias provided by E-IMD is intended for educational purposes only. It should never be used for diagnostic or treatment purposes. If you have questions regarding a medical condition, always seek the advice of your physician or other qualified health professional.
E-IMD is a not for profit organisation, with limited resources. Therefore, we cannot guarantee that all information provided by E-IMD will be completely current and accurate. The information provided on this website should never be used as a substitute for professional medical advice.

Privacy policy

At E-IMD we are committed to protecting your privacy. Confidentiality of data relating to individual patients and visitors to the E-IMD website, including their identity, is respected by this website in accordance with the provisions of the Data Protection Act 1998. The website owners undertake to honour or exceed the legal requirements of medical/health information privacy that apply in the country and state where the website and mirror sites are located.
Only data which has been voluntarily provided will be held and such data will only be used by E-IMD to administer our relationship with you in connection with our charitable activities, aims and related purposes. We will not, without your consent, supply your name and address to any third party except where (1) such transfer is a necessary part of the activities that we undertake, or (2) we are required to do so by law.

If you use our website and are asked for personal information at any point, you are only sharing that information with E-IMD alone, unless otherwise stated.

E-IMD - www.e-imd.net