logo
Our activity

E-IMD partners

E-IMD has more than 40 partners from 18 countries. It has established links between healthcare professionals, patient's representatives, industry and government authorities within Europe, candidate countries, the US, Canada, and Australia. E-IMD will continue to expand its network by inviting new members from underrepresented countries.

 

Clinical partners (associate and collaborating)

Organisation Country Town Name Email
Medical University Innsbruck, Clinic for Pediatrics, located at Anichstrasse 35, 6020 Innsbruck, Austria Austria Innsbruck Univ.-Prof. Dr. Daniela Karall
University Hospital of Antwerp UZA, Department of Pediatricy Inherited Metabolic Diseases, Wilrijkstraat 10, 2650 Antwerp, Belgium Belgium Antwerp Prof. Dr. Francois Eyskens
Hôpital Universitaire des Enfants Reine Fabiola- Université Libre de Bruxelles, 15, av J.J.Crocq, 1020 Brussels, Belgium Belgium Brussels Dr. Corinne De Laet
Université Catholique de Louvain/Cliniques universitaires St Luc, 10 av Hippocrate, B 1200 Bruxelles Belgium Brussels Prof. Dr. Etienne Sokal
Institute of Pathology and Human Genetics (IPG), located at 25 Avenue Georges Lemaître, 6041 Gosselies (Charlerois), Belgium Belgium Gosselies Dr. Dominique Roland
Centre Hospitalier Universitaire de Liège, Metabolic Unit - Department of Medical Genetics, ULg Domaine Sart-Tilman Bât B35, B-4000 Liége, Belgium Belgium Liége Prof. François-Guillaume Debray M.D., Ph.D.
University of Zagreb, School of Medicine, Department of Pediatrics, Šalata 3, 10000 Zagreb, Croatia Croatia Zagreb Prof. Ivo Barić, MD, PhD
General Faculty Hospital in Prague, U Nemocnice 2, 128 08 Prague, Czech Republic Czech Republic Prague Prof. Dr.Med Jiri Zeman, DrSc
Copenhagen University Hospital, Rigshospitalet, 9 Blegdamsvej, 2100 Copenhagen, Denmark Denmark Copenhagen Dr. Allan Melgaard Lund
CHRU de Lille, a public health institution located at 2, avenue Oscar Lambret - 59800 LILLE (France), N°FINESS 59 078 019 3 - n° SIRET 265 906 719 France Lille Dr. Dries Dobbelaere
CHU Timone, Hôpital d'Enfants, Assistance Publique-Hôpitaux de Marseille, Centre de référence des maladies héréditaires du Métabolisme, Service de Neurologie Pédiatrique, 264 Rue Saint-Pierre, 13385 Marseille France Marseille Pr Brigitte Chabrol
Hôpital Necker-Enfants Malades, Assistance Publique-Hôpitaux de Paris, Service de Maladies Metaboliques, 149, Rue de Sèvres, F-75043 Paris France Paris Pr Pascale de Lonlay
Robert-Debré Hospital, Reference Center for Inborn Errors of Metabolism, APHP, 48, Bd. Sérurier, 75019 Paris, France France Paris Dr. Manuel Schiff
Goethe University Frankfurt/ Main, represented by the President, Theodor-W.-Adorno-Platz 1, 60323 Frankfurt/ Main Germany Frankfurt Dr. Martin Lindner
University Hospital Hamburg-Eppendorf, Klinik für Kinder- und Jugendmedizin, Martinistrasse 52, Haus N23, 20246 Hamburg Germany Hamburg PD Dr. med. Chris Mühlhausen
University Hospital Heidelberg, Pediatric Clinical Center, Im Neuenheimer Feld 672, 69120 Heidelberg Germany Heidelberg Prof. Dr. med. Stefan Kölker
Bonn-Rhein-Sieg University of Applied Sciences (BRSU), Germany Sankt Augustin Prof. Dr. Jörn Oliver Sass
University of Athens, Agia Sofia Children's Hospital, Thivon & Papadiamantopoulou Str., Goudi, Athens-11527, Greece Greece Athens Dr. Anastasia Skouma
Azienda Ospedaliera di Padova, U.O.C. Malattie Metaboliche Ereditaire, Dipartimento di Pediatria, Italy Padova Dr. Alberto Burlina
Ospedale Pediatrico Bambino Gesù, Tax Code no. 80403930581, with its registered office at Rome, Piazza S. Onofrio, 4 Italy Rome Dr. Carlo Dionisi-Vici
University Hospital of Amsterdam, Department of Pediatrics, Division of Metabolic Disorders, Academic Medical Centre (H7 256), Meibergdreef 9, 1105 AZ Amsterdam, The Netherlands Netherlands Amsterdam Dr. A.M. Bosch,MD PhD.
Erasmus Medical Center, 's-Gravendijkwal 230, 3015 CE Rotterdam, The Netherlands Netherlands Rotterdam Dr. Monique Williams
Wilhelmina Children's Hospital (part of UMC Utrecht), Lundlaan 6, 3584 EA UTRECHT Netherlands Utrecht Peter van Hasselt MD PhD
Screening Department, Institute of Mother and Child, Ul. Kasprzaka 17A, 01-211 Warsaw, Poland Poland Warsaw Jolanta Sykut-Cegielska, MD, PhD, Ass. Prof.
Centro Hospitalar S. João, EPE, Unidade de Doenças Metabólicas, Alameda Prof Hernâni Monteiro, 4200-319, Porto, Portugal Portugal Porto Dr. Elisa Leao Teles
Institute of Mother and Child, 93, Burebista Str., MD-2062, Chisinau, Republic of Moldova Republic of Moldova Chisinau Dr. Natalia Usurelu, MD, Ph.D., Ass. Prof.
“Petru Poni” Institute of Macromolecular Chemistry, Group of Biospectroscopy, Aleea Grigore Ghica Voda 41-A, RO-700487 Iasi, Romania Romania Iasi Dr. Calin Deleanu, Ph.D.
Institut za zdravstvenu zastitu majke i deteta Srbije “Dr Vukan Cupic”, Radoja Dakica Street 6-8, 11070 Novi Beograd, Serbia Serbia Novi Beograd Maja Djordjevic, MD, PhD
University Hospital Germans Trias i Pujol, Department of Paediatrics. Universitat Autònoma de Barcelona, 08916 Badalona, Spain Spain Badalona Dr. Guillem Pintos-Morell
Hospital Clinic de Barcelona, Section of Inborn Errors of Metabolism, located at C/ Mejía Lequerica, s/n, 08028-Barcelona, Spain, VAT Q0802070C Spain Barcelona Dr. Antonia Ribes
Hospital Sant Joan de Déu HSJD, located at Passeig Sant Joan de Déu, 2, 08950, Esplugues Llobregat, Barcelona, Spain, VAT R5800645C Spain Barcelona Dr. Angeles Garcia-Cazorla
Hospital Infantil Universitario Niños Jesús, Avenida Menéndez Pelayo 65, 28009 Madrid, Spain Spain Madrid Dra. Consuelo Pedrón-Giner
Hospital Universitario Son Espases, Carretera de Valdemosa 79, Palma de Mallorca, E-07010, Balearic Islands Spain Palma de Mallorca Dr. Angeles Ruiz Gomez
Hospital Clínico Universitario de Santiago, A Choupana, s/n, 15706 Santiago de Compostela, Spain Spain Santiago de Compostela Dr. Maria Luz Couce
INSEL GRUPPE AG, University Hospital Bern, Department of Paediatrics, Division of Paediatric Endocrinology, Diabetology and Metabolism, Freiburgstrasse, 3010 Bern, SWITZERLAND Switzerland Bern Dr. med. Matthias Gautschi, MD PhD
University of Zurich, University Children's Hospital, Eleonorenstiftung, Steinwiesstrasse 75, CH-8032 Zürich Switzerland Zurich Prof. Dr. Matthias Baumgartner
National Taiwan University Hospital, Department of Medical Genetics and Pediatrics, 8 Chung-Shan South Road, Taipei 10041, Taiwan Taiwan Taipei Yin-Hsiu Chien, M.D., PhD.
Great Ormond Street Hospital for Children NHS Foundation Trust located at Great Ormond Street, London, WC1N 3JH, UK UK London Dr. Anupam Chakrapani
National Hospital for Neurology and Neurosurgery, Charles Dent Metabolic Unit, Box 92, Queen Square, London WC1N 3BG UK London Dr Robin Lachmann PhD FRCP
Central Manchester University Hospitals NHS Foundation trust, of Trust Headquarters, Cobbett House, Manchester Royal Infirmary UK Manchester Dr. Andrew Morris
Children's National Medical Center 111 Michigan Ave NW, Washington DC 20010 USA Washington Dr. Kimberly Chapman

 

From patient support and industry partners

Country Town Name Email Organisation
France Paris   EURORDIS, Rare Disease in Europe
France Paris Samantha Parker Orphan Europe
Netherlands Zwolle Hanka Meutgeert Volwassenen en Kinderen met Stoffwisselingsziekten (VKS)
Belgium Melsele Lut De Baere BOKS vzw - Belgische Organisatie voor Kinderen en Volwassenen met een Stofwisselingsziekte VZW
United Kingdom Crewe Steve Hannigan Climb National Information Centre for Metabolic Diseases
Germany Aschaffenburg Hubert von Voss, Raimund Schmid Kindernetzwerk e.V
Greece Thessaloniki Persephone Augoustides-Savvopoulou Krikos Zois, Thessaloniki, Greece
Germany Friedrichsdorf Beate Szczerbak, Markus Ott Milupa Metabolics GmbH
Germany Heilbronn Patricia Stäbe, Claudia Kiener   Nutritia GmbH
E-IMD - www.e-imd.net